10 Years of addressing inequity in where research happens,
who leads & who benefits.
University of Cape Town, South Africa, 24 – 25 November 2022
To tackle disease we need evidence to be generated through every type of health research study. This conference aimed to bring together health research teams, organisations, health-workers, policy makers and practitioners to explore together how health research can be embedded into every healthcare setting. The Global Health Network also celebrated 10 years of mobilising research skills, know-how and methods to foster capable teams that generate new treatment strategies and prevention mechanisms that reduce the burden of disease within communities. Recorded sessions can be viewed on the conference page. Day 2 Session 7: Generating New Evidence from Data Related to Health discussed data use and management and may be of particular interest. |
The UKCDR and ESSENCE on Health Research’s Good Practice Document, ‘Four Approaches to Supporting Equitable Research Partnerships’, was published on 20th September in both English and French.
The Good Practice Document aims to support equity in research partnerships by assisting funders, research organizations and researchers to improve their ways of working in multi-country research consortia, particularly in relation to low- and middle- income country (LMIC) contexts.
Read the announcement here: English, Français
Read ‘Four Approaches to Supporting Equitable Research Partnerships’ now for practical ways to promote Equitable Partnerships:
English: https://bit.ly/3Rw1ZL4
Français: https://bit.ly/3BxdfzW
To launch the guidance, UKCDR & ESSENCE on Health Research are hosting a virtual event at the Science Summit of United Nations General Assembly 77 (UNGA77) on 26 September 2022. The event will explore ‘The role of funders in enabling equitable research partnerships for development’. Find out how to register here: https://www.ukcdr.org.uk/event/the-role-of-funders-in-enabling-equitable-research-collaboration-for-development/
"There is stark global inequity in health research in terms of where studies happen, who leads the research and the ultimate beneficiaries of the results generated."
Published in the Trials journal, highlighting how we are working to provide open access tools and resources for health research teams in need of support and guidance to design and run their own studies, particularly in low-resource settings.
Read the paper here: https://rdcu.be/cNvtb
In an interactive workshop we provided an in-depth look at the Hub through a live demo before participants shared their experiences of accessing materials to support development of high-quality protocols, and managing and sharing study data, and what they thought of the resources on the EDCTP Knowledge Hub.
The Global Health Network also presented posters and had a virtual stand at the Forum.
Visit: Tenth EDCTP Forum
The congress theme was Global challenges in health, migration and equity. Our poster presentation as part of ECTMIH Track 3 Program on Malaria, parasitic, vector-borne and neglected tropical infectious diseases was on The EDCTP Knowledge Hub: Developing an open platform for facilitating high quality clinical research
Date and time: 28 September 2021 at 14:00 – 14:50 CET
There was also a shared session with EDCTP during the ECTMIH Young Investigators Day which was an opportunity to build on existing skills or learn new ones.
Date and time: 1 October 2021 at 13.00 – 13.50 CET
Visit: ECTMIH 2021
Click here to view this seminar in full screen. |
Platforms & registries for sharing participant-level clinical-epidemiological, OMICs & imaging data14/07/21 In the research and public health response to COVID-19, there has been a rush to share data, marked by an explosion of population- and discipline-specific registries. Data sharing platforms, which generally predate the COVID-19 pandemic, have been expanded to include different types of COVID-19-related data. In this webinar, we present a comprehensive, living overview of COVID-19-related platforms and registries for sharing participant-level clinical-epidemiological, OMICs, and imaging data and review the interoperability of data sharing efforts and how these initiatives map to best practice for ethical, equitable, and effective data sharing and application of the FAIR Principles for managing data resources. Access the database of data sharing platforms A webinar report is available here |
The first of these two webinars, on data management and sharing, took place on 30 November 2020, and the second webinar, on tools and guidance for protocol development, was held on 25 February 2021. The recordings and reports can be found below.
Would you like to see a particular area of protocol development, managing and sharing data within the health research study cycle discussed in a future webinar? If so, then please don't hesitate to get in touch and get involved!
Click here to view this seminar in full screen. |
How to Produce a High Quality Health Research Protocol25/02/2021 A presentation of the tools and guidance available in the Protocol Development Toolkit on the EDCTP Knowledge Hub, to support the development of high-quality health research protocols. A webinar report is coming soon! |
Click here to view this seminar in full screen. |
The EDCTP Knowledge Hub: Providing tools and guidance for conducting clinical research30/11/2020 EDCTP and The Global Health Network present the EDCTP Knowledge Hub, an online platform with open-access resources for researchers conducting clinical research in low-resource settings. A webinar report is available here The question and answer session is available here |